Los Angeles Data Resource (LADR)

Data is obtained from administrative records and electronic health records of patients that received care across the affiliated medical centers.

The time range in which data is available varies by the institution and depends on the institution’s EHR database. LADR is continually being updated on a weekly or monthly basis, depending on the institution. We will display a chart with data counts across the institutions in the near future.

There is currently no option for patients to request that his/her information be excluded from the LADR database, but all of the fields for every patient specified by HIPAA rules for safe harbor de-identification will be excluded from the data repository except for dates and zip codes.

More information on the source data can be found on the LADR website.

ICD codes are based on billing data from both inpatient and outpatient encounters.

We have integrated both inpatient and outpatient medications using the Anatomical Therapeutic Chemical (ATC) Classification System hierarchy.

Yes, each patient reported in LADR is unique to the corresponding institution. Whether a query consists of multiple ICD-9 codes, demographics, date restrictions, etc., each patient is only counted once.

Currently, if a patient has been admitted to more than one LADR-affiliated site, he/she will be counted as a separate patient at each institution. This may inflate the total patient count across all institutions, but the site-level count will remain unaffected.

LADR is a cohort discovery tool and, thus, will only provide patient counts for a specific query. To go further and receive identified patient data for recruitment purposes, you will need to follow the steps below:

Obtain patient counts from each of the sites using LADR. Recruit co-investigators at each site from which you would like to receive identified patient data. Obtain IRB approval from each institution from which you would like to receive identified patient data. If applicable, the other LADR sites can use Trust and Rely to expedite their IRB approval process. Each site will then obtain the list of patients from their respective CTSI to recruit patients.

To get more information on how to access patient-level data from LADR, please click on the link below:

Obtaining Medical Record Data to Conduct Your Research

Our next step in LADR is to perform more in-depth data quality checks comparing the data available through all of the participating institutions. However, please report any query results that appear inaccurate so we can investigate right away.